 |
 |
 |
I have tried numerous self help remedies and Dr. prescribed medications (Oxycontin, Fetanyl, Lortab....etc, etc, etc.) It seems that absolutely nothing works when I have a flare up. I have also tried an herbal program of Malic Magnesium, 5 HTP and Red Algae, just a waste of a lot of money.
I moved to California six years ago to get away from the harsh winters of New York State. That has definitely helped a lot. In NY I had to walk with a cane. Fortunately I have only had to use it occassionally since I moved here.
The number 1 thing I was told by my Doctor was Avoid Stress. Sorry people but that is totally impossible. I was also told that I shouldn't be carrying my son. My son is developmentally delayed and didn't walk until he was over 3 yrs old and has since been diagnosed with Autism. So I had to carry him everywhere. I had no options. When my daughter was born in 2005, my Dr told me the same thing. Basically that I should have someone come in and care for her. (I literally laughed my ass off. How can someone with no income and has not been able to work for 2 1/2 yrs be able to afford such things. My husband's paycheck barely pays the bills.) I also had to carry her everywhere when she was younger. I still have to carry her a lot which does quite a number on my back.
My Dr. in New York was great. He was a Rheumatic specialist, and he was always
willing to try me on a new treatment that I had heard about. After a number of years and a bunch of idiotic Rheumatoligists (like the one at Saddleback Hospital that wanted to prescribe anti-inflammatories (Fibro has nothing to do with inflammation)), I did find a Rheumatogist here in California who is also willing to try anything. I have been seeing him since 2003. The biggest problem is he's 100 miles away!!
I have a wonderful Husband now. We have been together for approx. 6 years. He has always been very helpful with my son. But when it comes to the FM no matter how hard I try to explain to him about the pain I'm in he just says something like: "Well I hurt too and you don't hear me complaining." He thinks I am overreacting. I have no idea how to make him understand. I have printed out numerous articles from the Internet for him, but I don't think he has ever read them. I welcome your suggestions. Personally, I don't think it's possible for someone who doesn't have FMS to really understand it.)
Things I have learned:
Life is not the same as it was.
You cannot do everything that you want to do. I am a very self reliant person. When I want something done I want it done now. That gets me into a lot of trouble. For example, there were a whole bunch of saplings growing in my backyard (this was in 2003) that the Gardeners failed to remove when they were small enough to pull out. So I used the sawzall and cut them down myself. Ending up not being able to move or use my hands for two days. When I felt a little better I went right back out
there and started digging up the stumps with a axe. Again....not smart! My back is still hurting 3 weeks later. Though I accomplished what I set out to do and completed most of my task (I couldn't get three stumps out, but I did manage to make a beautiful flower garden) I was proud of
what I did and happy with the way it turned out, but it was not worth all the pain. Be careful what you do. It will affect you later.
Take long hot baths or showers and shut out the world. (My Husband bought us a hot tub... It works great...until you get out) Do things that help you relax. Get a massage, go to the Day Spa. You do deserve it! Also, find a hobby, something that won't hurt you. Mine is photography. No pain at all. Please feel free to check out my website http://www.geocities.com/elissas_photo_korner/
I've read a lot of what people have to say about there own suffering. Here are some of my
symptoms:
I hear a lot of people describing their pain as a burning pain. My pain has never felt like burning. I feel like somebody is putting a ton of weight on my back. I have often described my pain as feeling like I've been pinned against a brick wall by a MAC Truck. I have crazy mood swings and a very short temper. Anxiety and Panic Attacks. (My Dr. doesn't want me on Xanax all the
time...He told me to take it after the attack. What a bone head! My vision gets blurred and It sometimes takes me a while to focus. I don't sleep very well. I toss
and turn all night and usually am awakened during the night by muscle spasms in the legs, back and arms. I also have night sweats. Not to forget...Fibro Fog.. Not just confusion, but speech problems (words come out totally wrong, or I cannot even think of a simple word) and even writing problems, I will think I know what I am writing and I'll look up and I am completely missing words, word orders are messed up....etc
And of course the wonderful depression because I cannot live the life that I think I should be living.
Irritable Bowel Syndrome
Arthritis
Restless Leg Syndrome
Extreme exhaustion
Insomnia
Joint Pain
Extreme stress
Numbness in my hands and the top of my feet
All that wonderful stuff
Well that's all I'm writing for now.
Again I welcome your comments and suggestions
FMS Support Group
Below are some reciprocal links to help my website get more exposure. I do not make an guarantees about these links and my website is of no relation to them
Need Reciprocal Links? - Easily find link partners at SimplyLinking.com
Diabetes Milk Powder - Diabetes supplement that enhancing insulin effectiveness to achieve efficient blood glucose and lipids metabolism.
Cannabis Seeds - Buy the cheapest cannabis seeds in the UK.
greatest vitamin in the world - The Greatest Vitamins in the World. Unlike almost every vitamin company in the world today we use only the highest grade Whole Vitamins direct from fruits and vegetables. Order a bottle Today! The Greatest Vitamin In The World 100percent Satisfaction Guaranteed
The Greatest Vitamin In The World by Don Lapre. - The Greatest Vitamin in the World is one bottle of vitamins that nutritionally supports the entire body! Formulated by Doug Grant and endorsed by the NBCCA.For the amazing price of just $39.95 plus Shipping & Handling, you can try a 30-day supply of
Web Directory Links - Human edited web directory with a large category structure for quality and friendly sites. Free, reciprocal and paid submission listings are offered. Webdirectorylinks is also search-engine friendly.
Robbs health tips - Recipe for healthy living - Read about all aspects of staying healthy and fit. Read about; vitamins, diets, fitness and more. A recipe for a healthy life.
Buy Text Links, Sell Text Links, Exchange Text Links, Text Link Ads, Text Word Links For Free!!! at BuySellTradeLinks.Com - Buyselltradelinks.com is a free online service that allows webmasters of quality web sites to easily buy sell and exchange text links, Text Link Ads, Text Word Links, trade text links, swap text links with one another. Join today for Free!
Fish Oil - Learn the many benefits of including fish oil in your daily diet.
© 2007, Elissa's Fibromyalgia