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The internet has become a great resource for anyone, whether they deal with a chronic illness or not. You can find information on any topic you can name somewhere in cyberspace, but the reliability of that information depends on the source. I will try to focus on Canadian information, but I will also include links from other countries that I have found helpful.
My Fibro Links
- Fibrohugs is an excellent source of information and support. They have posted the "Letter to Normals", as well as the "Letter to Fibromites", both excellent pieces to help you and your caregiver cope with your illness. They also have a chart of the tender points and a list of 63 symptoms/illnesses commonly associated with fibromyalgia, message board for discussing topics relative to living with fibro, a chat room, and an excellent web resources page.
FM-CFS Canada
- Fibromyalgia-Chronic Fatigue Syndrome Canada is a good source of information, as well as having a patient registry for research and study purposes, a link to the weekly pain chart that I use to chart my activities and pain responses, links to local support groups, educational resources, and hospital programs, to name a few items.
IDACAN
- The Invisible Disabilities Association of Canada site is an excellent resource for information on living with environmental illness, chronic fatigue, fibromyalgia, and other invisible illnesses, as well as applying for Canada Pension Disability.
Devin's Fibromyalgia and Chronic Fatigue Syndrome Site
- Fibromyalgia and Chronic Myofascial Pain with Devin Starlanyl is an excellent site, written by a former ER physician who deals with fibro and chronic fatigue herself
Fibromyalgia & Chronic Fatigue Syndrome Resource
- ImmuneSupport.com is an excellent resource for articles, research abstracts, doctor-prescribed treatments, and other information related to fibromyalgia and chronic fatigue syndrome.
Medical Reference Links
RXList
- A searchable database of medications, doseages, side effects, adverse reactions, and patient monographs.
Canadian Health Network
- A Health Canada searchable site on all health-related issues.
Merck Medical Manual - Home Edition
- the on-line version of The Merck Manual - Second Home Edition.
My Adhesion Links
Bombo Beach
- Bombo Beach is a not-for-profit organization founded in Australia, now serving as the parent organization for The Australian Adhesions Support Group, Inc. and The American Adhesions Support Group, Inc. Bombo provides education and support for adhesion sufferers around the world by way of personal stories, a message board, and a chat room, as well as promoting awareness and recognition of adhesions world-wide.
International Pelvic Pain Society
- The International Pelvic Pain Society provides information and resources for women suffering from pelvic pain and medical professionals as well.
Pain Sites and Resources
American Pain Foundation
- The American Pain Foundation provides information, advocacy, support, and resources for pain patients, including a link to the Pain Care Bill of Rights, The Pain Notebook, chats and discussion board, and a Resource Library.
North American Chronic Pain Association of Canada (NACPAC)
- The North American Chronic Pain Association of Canada provides information for both American and Canadian chronic pain patients.
Pain Awareness In Nova Scotia (PAINS)
- Pain Awareness In Nova Scotia (P.A.I.N.S.) provides links to chronic pain news, articles, and information
Invisible Disabilities
- The Invisible Disablities Advocate is an excellent support site for chronic pain patients, caregivers, family and friends.
Mankoski Pain Scale
- This is a pain scale created by Andrea Mankoski to rate the pain she suffered from endometriosis.
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